Item Details

title

The Ethics of Testing for Adult-Onset Conditions in Pediatric and Prenatal Genetics

author

Wiley, Lindsay

abstract

With the growing applications of genetic testing among all fields of medicine, the possibility of testing for adult-onset genetic conditions in non-adults, meaning within pediatric and prenatal medicine, is at the forefront of discussion. Testing for adult-onset conditions in non-adults has been a topic of ethical interest and speculation due to the nature of purpose and decision-making within pediatric and prenatal medicine. While various guidelines and recommendations address this topic, there are questions of ethical concern about the current testing practices. In this thesis, I examine the current guidelines and practices in both pediatric and prenatal genetics. The guidelines are evaluated for useful and problematic content that is then analyzed using Beauchamp and Childress’s four principles of bioethics: respect for autonomy, beneficence, non-maleficence, and justice. This ethical analysis proposes recommendations and revisions that aid in providing more ethically conscious guidance and care.

subject

Autonomy

Ethics

Genetics

Pediatric

Prenatal

Testing

contributor

Iltis, Ana (advisor)

King, Nancy (committee member)

Colgrove, Nicholas (committee member)

date

2024-02-13T09:36:04Z (accessioned)

2024-08-12T08:30:06Z (available)

2023 (issued)

degree

Bioethics (discipline)

embargo

2024-08-12 (terms)

identifier

http://hdl.handle.net/10339/102901 (uri)

language

en (iso)

publisher

Wake Forest University

type

Thesis