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The Ethics of Testing for Adult-Onset Conditions in Pediatric and Prenatal Genetics

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title
The Ethics of Testing for Adult-Onset Conditions in Pediatric and Prenatal Genetics
author
Wiley, Lindsay
abstract
With the growing applications of genetic testing among all fields of medicine, the possibility of testing for adult-onset genetic conditions in non-adults, meaning within pediatric and prenatal medicine, is at the forefront of discussion. Testing for adult-onset conditions in non-adults has been a topic of ethical interest and speculation due to the nature of purpose and decision-making within pediatric and prenatal medicine. While various guidelines and recommendations address this topic, there are questions of ethical concern about the current testing practices. In this thesis, I examine the current guidelines and practices in both pediatric and prenatal genetics. The guidelines are evaluated for useful and problematic content that is then analyzed using Beauchamp and Childress’s four principles of bioethics: respect for autonomy, beneficence, non-maleficence, and justice. This ethical analysis proposes recommendations and revisions that aid in providing more ethically conscious guidance and care.
subject
Autonomy
Ethics
Genetics
Pediatric
Prenatal
Testing
contributor
Iltis, Ana (advisor)
King, Nancy (committee member)
Colgrove, Nicholas (committee member)
date
2024-02-13T09:36:04Z (accessioned)
2023 (issued)
degree
Bioethics (discipline)
embargo
2024-08-12 (terms)
2024-08-12 (liftdate)
identifier
http://hdl.handle.net/10339/102901 (uri)
language
en (iso)
publisher
Wake Forest University
type
Thesis

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