Item Details

title

STORIES TOLD AND UNTOLD: USING NARRATIVES TO TRAVERSE THE ILLNESS EXPERIENCE

author

Abboushi, Taylor

abstract

Shared decision-making in healthcare today recognizes that individuals around apatient may be involved in the decision-making process but emphasizes an atomistic view of the patient’s autonomy. Atomistic autonomy views the patient in isolation from their social environments and relationships. The primary focus of this thesis is to argue a more ethical view of autonomy in healthcare would be to reframe the patient’s autonomy from being atomistic to relational. I also argue that the use of narratives, through both narrative ethics and narrative medicine, can illustrate all the people around a patient who are affected by the patient’s illness, who are relevant to the illness story, and as such should be considered in the decision-making process. I begin with establishing the relevance of others to the patient’s illness and review frameworks like shared decision-making and patient-centered care. I follow with an analysis of how narratives and relational autonomy may be utilized in the areas of mental illness and genetics. I conclude with an examination of how culture and narrative influence autonomy.

subject

Narrative

Relational Autonomy

contributor

Iltis, Ana (advisor)

Mepham, Aimee (committee member)

date

2024-02-13T09:36:04Z (accessioned)

2024-02-13T09:36:04Z (available)

2023 (issued)

degree

Bioethics (discipline)

identifier

http://hdl.handle.net/10339/102902 (uri)

language

en (iso)

publisher

Wake Forest University

type

Thesis