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CREATION AND IMPLEMENTATION OF BIOETHICS EDUCATIONAL MATERIAL FOR GENETIC COUNSELING TRAINING PROGRAMS

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title
CREATION AND IMPLEMENTATION OF BIOETHICS EDUCATIONAL MATERIAL FOR GENETIC COUNSELING TRAINING PROGRAMS
author
Lisi, Emily
abstract
The increasing understanding of genetics, advancement of genetic/genomic technologies, and availability of genetic/genomic testing have increased the demand for genetic counselors and resulted in a significant growth and expansion of our profession. While coursework on genetics/genomics and psychosocial counseling are crucial in genetic counseling education, it is imperative that genetic counseling training programs also offer education around bioethical issues that relate specifically to genetics professionals. To this end, I have created four bioethical modules designed for genetic counseling training curriculum. The modules each contain a chapter summarizing the literature on a specific topic, recommended reading assignments for students, example questions to facilitate discussion in the classroom, and potential classroom activities to promote engagement. These modules include: the history of the genetic counseling profession and ethos of nondirectiveness, reproductive autonomy as it relates to the tenets of genetic counseling, ethical issues around assisted reproductive technologies, and ethical considerations involving screening for APOL1 high risk variants in Black American potential living kidney donors in light of our current understanding of health disparities in America. These modules will be provided to accredited genetic counseling programs in the U.S. and will serve as a proof of concept for the development of more modules for genetic counseling students in the future.
subject
assisted reproductive technologies
bioethics education
eugenics
genetic counseling
reproductive autonomy
contributor
Iltis, Ana (committee chair)
Colgrove, Nicholas (committee member)
King, Nancy (committee member)
date
2022-01-15T09:35:38Z (accessioned)
2022-01-15T09:35:38Z (available)
2021 (issued)
degree
Bioethics (discipline)
identifier
http://hdl.handle.net/10339/99399 (uri)
language
en (iso)
publisher
Wake Forest University
type
Thesis

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